Ella's Entourage Walk

Walk. Support. Donate.

For Ella, for every family affected by HNRNPH2, and for a future where no child faces this journey alone.

WALK
Sunday, September 20 - Walk for Hope. Walk for a Cure. 💛
Stay afterward for music, coffee, bagels, and donuts as we celebrate this incredible community.
Additional details will come in ticket confirmation emails from Givebutter.

DONATE
Every contribution brings us one step closer to a cure.

Walk tickets and donations 100% of proceeds support the Yellow Brick Road Project, the nonprofit leading research, advocacy, and treatment for HNRNPH2.

ELLA’S STORY

Ella is one of just 221 known people worldwide living with HNRNPH2-related neurodevelopmental disorder (HNRNPH2-RNDD)—a devastating rare genetic condition that affects her ability to walk, speak, and learn. Every milestone is hard-earned, and every step forward is a victory.

Today, there is real reason for hope. Thanks to the relentless efforts of families and researchers, the first-ever clinical trial for HNRNPH2 is underway—a historic milestone for our community.

But this isn't the finish line. The treatment requires a spinal tap every 12 weeks for life, and it isn't a cure. We still need better treatments. We still need answers. We still need a cure.

That's why we walk.

Whether you're family, a friend, or simply someone who believes every child deserves hope, you belong here. 

Learn more at YBRP.org